Neurofibromatosis Society of Ontario

Location, Telephone & Internet
Office Phone 905-683-0811
Toll Free Phone 1-866-843-6376
Located In Community Toronto
Contact Information
Primary Contact Lynne Leyland, Medical Liaison
Volunteer Coordinator Maureen O'Halloran, Volunteer Coordinator; Email:
Primary Executive Sonya Corson, President; Email:
Mailing Address PO Box 91119 
Bayview Village 
Willowdale, ON M2K 2Y6
Description & Services
Description (Service) Information and support to people with Neurofibromatosis (NF) and their families * promotes awareness, educates members, the public and professionals * creates acceptance * supports research * May is NF awareness month
Sup. Description Neurofibromatosis (NF)is a progressive, highly variable genetic disorder that causes multiple tumours to grow on nerves anywhere in the body including the brain and the spinal cord. It can result in curvature of the spine, deformation of bones, brain tumours, blindness, deafness, severe disfiguration, loss of limbs, learning disabilities, psychological problems and social isolation. There are three NF categories. NF1 is the most common form with an incidence rate of 1 in 3,000.
Areas Served Durham Region ; Ontario
Eligibility Those with Neurofibromatosis and their families
Application Available online
Languages English
Fees Membership - $10 annually ; Membership fee entitles you to all newsletters and all updated material regarding Neurofibromatosis
Other Details
Elections Elections to the board are held every 2nd year
Meetings Bi-annually in Toronto in the spring and fall
Physical Access Call for details